Quote:
Originally Posted by Karenish
I have been on cyclo now since ATG in Feb of this year, so nearly a whole year....counts are just beginning to climb now, so I can safely presume I will be on it for another year yet. good luck, you do need specialists in this disease, its so different for everyone. xxx
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We are waiting for a second opinion.
It's sad to see how my husband goes through ATG (5 days course and 3 weeks at the hospital) without any problems, recovers normal CBC (both times) and then relapses.
Only in this forum I was told by Helpful that his dosis may be too low - then I started to search and yes, too low.
Isn't it completely crazy???
