MDS in Oregon
I was diagnosed in November 2011. Live in Roseburg and I am starting my third round of Vidaza this week. No change yet. I have had 4 blood transfusions and spent a week in the hospital in January due to fungal infection in lungs and then pneumonia. Also receiving 3 shots of Neupogen (not sure how to spell that) each week and taking boat load of pills. I'm 58 years old and was a smoker for about 15 years, I quit in early 1980s.
I have started the process of getting a bone marrow transplant at OHSU. Luckily I can still work and have health insurance.
I lived in North Eugene for 21 years. My son is a senior at U of O. My daugther graduated U of O and lives in Portland.
Anyway, I would like to hear how you are doing and what is being done to treat your MDS. I hope things are going well.
John
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John; diagnosed Nov 11 with MDS; currently receiving Vidaza infusions
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