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Old Fri Mar 9, 2012, 11:55 AM
evansmom evansmom is offline
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Join Date: Nov 2007
Location: Ontario, Canada
Posts: 203
Great news Chris, wishing Kira all the best.

In your previous post, you wondered if the cause of Kira's AA had anything to do with her chronic inflammation etc.

I'm not sure if I've ever posted my thoughts on this specific subject or not but sometimes I wonder as well if something like that caused Evan's AA. Even though he tested negative for all of the viruses (eg Parvo) that have been known to cause AA when his bone marrow failed, it still doesn't remove the fact that for many months (if not a year or more) before we knew he was sick, he experienced drenching night sweats on and off. He never felt ill with them and never registered a fever any time we would check it. I would tell his doctor "this is not normal", my daughter never once had a night sweat. But everything always checked out fine, not even a swollen lymph node to be found.

We learned in transplant that Evan had cysts in his right kidney. To this day they remain and are considered simple and no cause for concern. As well, to this day, Evan experiences drenching night sweats on occasion, maybe 2-3 nights per month (as far as I know).

There are times I think I'd like those cysts biopsied for my own piece of mind but so far, I have just kept these thoughts tucked in the back of my mind.

For all of these idiopathic cases of AA, I believe with all my heart that there is a trigger for each and every one.
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Nicole, mom to Evan (20); diagnosed SAA November 2007, hATG mid-November 2007, no response after 6 months, unrelated 9/10 BMT June 2008, no GVH, health completely restored thanks to our beloved donor Bryan from Tennessee.

www.caringbridge.org/visit/evanmacneil
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