Thank you for telling us Kieras story and congratulations on the date for your daughters BMT.
We were also nervous, exited and scared going into our daughter Ellen’s BMT, but now 14 days in things could not be going better and we are more confident each day that she will beat her disease – MDS.
I have answered your post in the paediatric forum – and hope you might find my suggestions useful.
Like you and Evans mom I cant stop wondering, what could have triggered Ellen’s MDS. And I was a bit chocked to read about Evans night sweats. About a year prior to Ellen’s diagnosis, she began sweating through nightgowns and sheets. This happens a couple of times each month. Our doctors have not offered any explanation, however a seasoned nurse told us she had met several MDS and AA kids who had the same experience…
All the best
Freja