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My daughter was successfully treated for SAA in Dec 2007, was on a full dose of cyclosporine for about 7 months, and then tapered over about 9 months. Her counts were in normal range and then she relapsed after 14 months without cyclosporine. She started back on the full dose (300 mg) of cyclosporine, which recovered her counts within 2-3 months. Once again she stayed on full dose for about 6 months or so and then started a very slow taper -- 25 mg every 3 months. That had been going well until this last month when her counts again have started looking a little suspect. We're currently in a hold and watch phase. So far her kidneys have been fine with the exception of a stretch about a year ago when she had six weeks of sinus infection followed by the stomach flu and she got dehydrated. She has not had prednisone since it was tapered a few weeks after the original ATG treatment 4 years ago.
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Kim, mom to Shauna, SAA 10/2007 at age 19, ATG/Cyclosporine 12/2007, end cyclo 4/2009, relapse 8/2010, and 9/2012, counts recovered on cyclo alone 300 mg/day x 2.
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