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Hi Irini....
Hope you are doing well...
I think we have a similar case, my Dad(82 years old) had Neuropathy disease or what we
call it CIDP (Chronic inflammatory polyneuropathy) since 1992...
6 months ago dad became more and more weak...pale, breathless...walking became hard...his
doctor ask him for CBC test and the results showed very LOW Blood count...
we admit him to the university Hospital in beirut-Libanon, and there they do for him bone
marrow biopsy and bone aspirate...and finally they told us the bad news that he had
RAEB2...and he need transfusion once a week due to the support of the EPREX injection and
Neupogen.
Few months later, dad became blood transfusion dependent (weekly) and even platelets.
the catastrophe is when his old disease (Neuropathy) became worse, and he lost 90% of his muscles.
last time our Neurologist suggested to give dad a double dose of "IVIG" hoping to recover what he lost.
Unfortunately MDS has been transformed to AML and we started with the VIDAZA and he just finished the third cycle, he had no side effect unless he is getting weaker and weaker, to a point that he can not stand up just to urinate.
Blast cell are appearing in the peripheral blood too, they become less when we take vidaza.
i am praying all day night for dad, to become better and to respond to the new treatment and become transfusion independent...
Now every 1 week dad need blood and platelets transfusion, iron in blood became so high...his immunity is so low ANC=108 (Normal=1500-5000)
I wish for your father to get better Irini
i know its hard but we have to stay next to him and give him the maximum support and love.
Best regard
Ziad Mohsen
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