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Thank you so much Sally. As usual, searching the wrong thing. The last two wks he has had some kind of treatment every day but two. We have slept off and on all day trying to catch up with rest. It seems to take three shots a week to keep the white cells up and the Procrit does little for the red cells. They just keep dropping until another transfusion at 11-14 days. Platelet transfusions help briefly. This is such a roller coaster, confusing, complicated disease, especially if all three cells lines are affected. I am grateful though that there are some treatments now. Not sure why his doctor hasn't mentioned Promacta.
I am so glad your husband is responding in both cell lines. That is wonderful. Thank you so much for taking the time to respond. Sorry I am so dense.
Beth
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Husband -MDS RAEB; Dx 4-07;age 73; Blasts 6.6%. Dacogen successful for 2 yrs; WBC (1.21-2.3);Platelets-12; RBC 2.22. Lenolid 100 mg and Pred(30mg) 4m. Disc. Procrit & Neupogen 3wk for last 3m. Trx every 2 wks. Platelet trx 2wks past. Started Vidaza 3-12-12 five days on, 3 wks off.
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