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Hi Beth,
We are all somewhat "dense" with these complex, complicated, unpredictable diseases. You'll be amazed how much you will learn as time goes by - but how much more there is always there to learn.
Your doctor may not have mentioned Promacta because it's only available to MDS patients via clinical trial.
Ask any questions you have - there are many smart, educated people who have been learning, researching and living with these diseases for years. This forum is a storehouse of knowledge and full of people who want to help as well as provide information, personal stories and most of all - support - to anyone who wants or needs it.
And may I add that all 3 lines of my husband's blood were affected at first. There was a point that his neutrophils hit .00. But his white cells eventually normalized after receiving Campath in 3/09 at NIH. With the right treatments sometimes via trial and error, the right doctors, and perserverance there is always the hope and possibility of improvement!
God Bless and good luck!
Sally
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