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Your father
Ziad - Like you, I am primary caretaker for my mother, who at 89 years old, has end stage MDS. What I have discovered over the past 12 months is that there is no rhyme or reason to what MDS can and does "do" to the body. It is usually not like other illnesses where some treatment or drug will make the person better forever. I've learned that MDS has a MIND OF ITS OWN, and chooses when and how to attack the body. My mother has good days/weeks and bad days/weeks. I am celebrating her here and now because I don't know how long she will be with us. I used to second-guess everything the hematologist said and did, but I don't anymore. My advice is to try to stay positive and focus on your father from one day to the next, and don't dwell so much on the minutiae of the medical things unfolding. He needs your undivided love and attention.
Take care.
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Jil, dtr of Wilma age 90; dx May 2011; MDS refractory cytopenia IPSS Int 1; platelets 35, WBC 3.5 & RBC 3.06
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