It's a mystery to me too. Usually I have them within a few days of PRBC transfusion. Curently off Exjade for another week or so - I thought there was a connection, but the sore I'm dealing with now has been the most painful and long-lasting. I guess for me it's just a risk involved with living with regular transfusions. None of the usual mouthwashes that have been helpful to me so far have done anything for this nasty little $#%@^#. 
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Ric: Low-risk MDS (blasts <4%); 4 cycles Revlimid no positive response; PRBC transfusion dependent; so far, 392'units' over 8 3/4 years; BMB #4 (15/04/01) shows evolution to AML (blasts 20-30%  ) 47,XY,del(5) (q22q35),+21[24][cp24]/46,XY(1).
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