It's very good to hear about these encouraging experiences.
In December 2007 I was hospitalzed for about two weeks while many medical specialists tried their best to find out what was causing my severe dehydration and extreme physical weakness with daily weight loss of about one pound per day. It was my GP who became concerned about my Hgb level (90 at that time) and referred me to blood disorders specialist for a BMB. In March 2008 I was finally diagnosed with low risk MDS. Since then I've had 187 units of PRBCs averaging about 2 every 3 weeks. My life has its limits now, but I'm still going the best I can and every new day is a gift for me.
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Ric: Low-risk MDS (blasts <4%); 4 cycles Revlimid no positive response; PRBC transfusion dependent; so far, 392'units' over 8 3/4 years; BMB #4 (15/04/01) shows evolution to AML (blasts 20-30%
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47,XY,del(5) (q22q35),+21[24][cp24]/46,XY(1).