|
Copper
Hi Chirley,
Very positive that your Hgb and biochem are better after extra copper and that you perhaps are improving neurologically!
Wonderful that you and your uncommon disease can help children with the same chromosome aberration! I - like you and many other members - have thought many times that if your first doctor nine years ago had controlled copper your prognosis should have been much better. I admire your courage!
Kind regards
Birgitta-A
|