[jenb81147]

Hi everyone, I'm new on here and need some advice if anyone can help! I have an (almost) 2 year old who has been diagnosed with 'bone marrow failure'. WBCs are within normal limits, platelets are low but usually above 100,000. RBC infusions are necessary at least monthly. 2 bone marrow biopsies 2 months apart, no blasts, but abnormal results. 2nd bx showed an increase in scar tissue. She gets sick frequently but gets over things, eventually. She does have a chromosome abnormality and has never been very healthy so the MD says she's not a candidate for a bone marrow transplant. 2 big questions for anyone with experience with something similar... She's often very fussy, any idea if she's in pain and if so how much? I really want her to be comfortable. Anyone have any idea how long she will live? Thanks so much for any replies.