Oncologist believes that MDS is progressing. Based on
- my husband still in hospital form 4/21
- development of neutropenia when WBC have never been worse than marginal
- platelet count worsening rather than rebounding 1 month post-chemo
- development of unexplained high fevers and occasional unexplained diffuse pain
he believes that if it has not yet progressed to AML, it is very close.
He feels that it is too risky to do another round of Vidaza, since my husband's counts are still low and the last round ended with hospital admission. He discussed other treatment options, such as standard induction therapy for AML but at a lower dose, or transplant, but the risk is very high and the odds of remission very low.
My husband has decided on supportive care, but has not yet communicated that to anyone other than me. Given that decision, they will probably release him from the hospital soon. The oncologist has patients that have lived for years with transfusions, but when pressed admits that the secondary MDS/AMLs tend to be "nastier" and more aggressive and my husband may have months rather than years.
He has had 6 daily Neupogen injections. We will ask about Neulasta.
Other than frequent counts and transfusions as needed, what have people used as supportive care?