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in the same boat
Seems we are in the same boat. My father is in hospital since 14 april due to fever and low counts. The doc says the same thing that disease is progressing. He requires transfusion of platelets every alternate day. Seems his fever due to infection is under control, however he hs now develeloped fever due to disease , as the fever goes away after sweating on its own, without taking paracetamol. Previously he has to take 4-5 paracetamol in a day to control the fever along with anti fungal abnd antibiotics. However the main concern now is his platelets. We have tried revolade without sucess and thalidomide is not working now. He is not taking any medicine since last 5 days. Doc is suggesting trying decogen as last resort. We are in a fix now. Trabnsfusing platelets every alternate day is neither feasiable nor practical. Trying decogen is also full of risk. But sooner or later we might have to chose our poison.
All the best
regards,
neel
P.S. :- Any suggestions are welcome.
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Father age 64 diagnosed with MDS RAEB-2, with 15%-18% blasts in October 2010. Only had blood and platelet transfusions. Ayurvedic treatment which showed result for arnd 5 months. Started Tahlidomide 100 mg started on 22 nd April 2011. Revolade 50 mg started on 2 nd april 2012.
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