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This is a very scary time. I think you mean Dacogen? I think for my husband the risk with Dacogen would be as high as with another round of Vidaza. Your father's circumstances may be different though.
I thought I read that Thalidomide is for RBC production rather than platelets? Did it help with your father's platelet counts in the past?
My husband's fever comes every few days, spikes suddenly to 102-4, and comes down with Tylenol. All blood and urine cultures are negative. In between he goes for 2-3 days with no fever at all. The oncologist sees that as consistent with AML.
My husband has been getting platelet transfusions about every third day when he goes below 10,000. No one has told us that's not feasible. How low are your father's platelet counts? Since this is a new path for us I have to ask, why are every other day transfusions not possible? Is it a supply issue? Or is your father not tolerating the transfusions?
That brings up another question too. Are there growth factor medications like Neulasta for platelets?
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husband, 70, diagnosed with treatment-related MDS in March 2012; in treatment with Vidaza; previous cancer of the nasopharynx
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