Follow your gut. If you feel she's experiencing pain, definitely make note and ask your dr. about it. Maybe try to journal it to see if there is a trend of some sort? And, yes, when she's dealing with really low RBC's, she won't want to eat or drink. When you're low, eating and drinking just seems to take too much effort. All you want to do is sleep.  Poor girlie.
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Angie
36 yr. old, dx SAA in Jan 1996, treated with ATG in Mar. 1996, off cyclosporine Sept. 1996, last blood transfusion in Aug. 1997, slow decline in counts again November 2010, AA and current count decline thought to be caused by lupus, currently taking 400mg Plaquinil
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