[usaf1125]

You are right, you are in charge, sometimes it does take a lot of sreaming to get attention. A couple of years ago, I was admitted with another condition,they drew blood samples I asked the results on my CRT it was at 27.5. I told the nurse I needed 2 units of blood, I was informed that they never give blood at that level, has to be much lower. I asked the nurse if she knew what MDS was, surprise she had no idea. I used my phone to call the Infussion room, told them what was happening, they called my Oncoligist, I got my blood. Don't assume they all know what they are doing, I even had nurses that didn't know how to access my Port. Scream and Holler, it's your life