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Old Thu May 24, 2012, 10:27 PM
Chirley Chirley is offline
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Join Date: Oct 2007
Location: Logan City Australia
Posts: 1,100
Hi, thanks for your replies. I wasn't sure if I was being concerned unnecessarily seeing as my doctor dismissed the bradycardia.

I've had my electrolytes tested and they have returned to normal since I ceased the Fludrocortisone so that's not the cause of my slow heart rate.

I'm in daycare again today and my BP is 105/54 and pulse is 44, the nurse who took the obs didn't remark on it at all.

I won't see my doctor again for another 3 and a half weeks because my next copper cycle has been postponed due to a public holiday and another doctors appointment for my eyes.

I don't feel comfortable waiting that long with my heart rate being this low. I Googled copper and bradycardia and apparently there is a relationship due to interference with electrical conductivity.

Marlene, you're right about trying to avoid crisis management by being proactive but sometimes it's difficult to get people to listen. Maybe I should be more assertive (or scream and shout so I'm no longer invisible).

Regards

Chirley
__________________
Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
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