Hi, thanks for your replies. I wasn't sure if I was being concerned unnecessarily seeing as my doctor dismissed the bradycardia.
I've had my electrolytes tested and they have returned to normal since I ceased the Fludrocortisone so that's not the cause of my slow heart rate.
I'm in daycare again today and my BP is 105/54 and pulse is 44, the nurse who took the obs didn't remark on it at all.
I won't see my doctor again for another 3 and a half weeks because my next copper cycle has been postponed due to a public holiday and another doctors appointment for my eyes.
I don't feel comfortable waiting that long with my heart rate being this low. I Googled copper and bradycardia and apparently there is a relationship due to interference with electrical conductivity.
Marlene, you're right about trying to avoid crisis management by being proactive but sometimes it's difficult to get people to listen. Maybe I should be more assertive (or scream and shout so I'm no longer invisible).
Regards
Chirley
__________________
Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
|