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Hi, I'm sorry you're Dad is in pain.
My only experience with pain like this was when my copper level was really low and I was being given copper infusions. As the copper was starting to work and the bone marrow started regenerating, I got joint and bone pain. It started as a tight cramping feeling in my lower back and spread to other areas including my sternum and base of skull. It wasn't very pleasant but only lasted 24 hours the first time and 48hours the second time.
I understand that people who have Neupogen and Aranesp can also experience this pain.
I tried to look on it as a positive thing because it meant my bone marrow was responding. (pain killers were still welcome, the doctor ordered Endone tablets).
Regards
Chirley
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Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
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