View Single Post
  #11  
Old Tue Jun 5, 2012, 01:02 PM
chrplunk chrplunk is offline
Member
 
Join Date: May 2012
Location: Charlotte, NC
Posts: 14
Question

Quote:
Originally Posted by sttery View Post
Hi, I am a female 74yrs. and was diagnosed 2 years ago with Hypocellular mds. My platelates and Hemoglobin was extremely low, and had to have a transfusion. Dr. put me on 300 mg. of cyclosporin. Both my platelets and hemolobin levels went up to a normal range. After a few months on 300 mgs.,Dr. lowered medication to 200 mgs. After a few months and normal blood counts, we again lowered medication to 100 mgs., and up until now counts remained in normal range. We are contemplating stopping medication, which makes me nervous. Has anyone on record been able to stop medications and counts remain normal??? If anyone has an info on this I would appreciate your input. Thank you, Mrs. C. Slutz
Hello. I'm sorry I can't answer your question but I have a question for you... my mom is in the exact same boat as you now that you were two years ago... she just started the CsA about three weeks ago. Her platelet count dropped from the 'normal' range for her of 39 to 29 the first week then 19 last week. We are eagerly awaiting tomorrow to find out if it has dropped further. My question is when you were on the CsA, did your counts initially drop before they went up and also, about how long did it take for your counts to come up?? Thank you so much.
__________________
Chris Plunkett
Mother has MDS 71yrs RCMD Trisomy 8 and very healthy. IPSS score 1 with very low platelet counts.
Reply With Quote