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Old Fri Jun 8, 2012, 08:31 AM
chrplunk chrplunk is offline
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Join Date: May 2012
Location: Charlotte, NC
Posts: 14
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Quote:
Originally Posted by sttery View Post
Hi Chris, Sorry I'm late in my response, but have been away. Hope your Mom's platelet count has gone up on your last visit. When I first was diagnosed I had to have 2 platelet transfusions and Dr. put me on 30 mgs of cyclosporine. Yes, my platelet count dropped on this doseage. I was then sent to a Specialist in Miami, Fl. He put me on 300mgs and then my counts started to go up. I have now been on 100mgs for close to 2 yrs. and my counts, as of last visit, were back to where they were before I was diagnosed. I consider myself very blessed. Sure hope your Mom will do well on cyclosporine. Please keep me posted. Will keep her in my prayers
THANK YOU so much for responding. Good news, her counts did go up this week. Plt went up to 24. While that's not astounding, they had been dropping 10 per week so an increase of 5 is great news. Also her WBC count hasn't been this high in two years. Thank you, and everyone, for your prayers. We're all in this together and this forum has been a real source of both knowledge and comfort for our family.
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Chris Plunkett
Mother has MDS 71yrs RCMD Trisomy 8 and very healthy. IPSS score 1 with very low platelet counts.
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