Quote:
Originally Posted by dfantle
Hello, I have AA, not MDS, so may be wrong here, but from the counts you gave it seems that he may be needing transfusions and lab checks much more frequently than he's getting them. For 9 months, until this past March, I was getting 1 unit of blood weekly, platelets every 2-4 days and labs 2-4 times a week. My team set transfusion thresholds of 10k for platelets and 25-26 for my hematocrit (which seems to be close to 8.5-9 for HGB.
I truly was at my clinic 5-7 days/week over that 9 month period. I had a treatment end march Which has reduced that a bit. However because I'm just starting to see some improved blood counts my team still has me come in for labs 2x a week.
How often are your dads doctors checking his blood counts?
Best,
|
Dena,
As of last week my Dads hemo/onc was scheduling blood tests every 2 weeks. In 1 month he was in the ER twice once with hb 6.0 and then the 4.7 hb. I would have assumed the dr would have changed to weekly but he didnt make the change until yesterday when my parents, armed with demands if mine, changed the testi g schedule. We also had ti demand that a blood test be giveb after every transfusion so we know where his count is as he would never order one.
There is so much to know and ut seems his dr answers so little thats why Im so thankful I found this site!!!!!!!