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Thank you for your response and info. He didn't know about the Hep C until right before the diagnosis of the MDS, so he's had no treatment for that. He started Dacogen almost immediately upon given the diagnosis.
Everything is so confusing, not to mention difficult. It's hard to watch someone you love decline, especially when they were so full of vigor. This disease is terrible. We would like to know exactly what we are dealing with, so we can help even more. If it means going somewhere else for treatment, then that's what we will do. We aren't really getting any feedback from any of his Drs and that in itself is very frustrating. I really need to know what questions to ask when we go back for the results of the last BMB next week.
Prayers of healing going up for you and your husband. None of this is a walk in the park, but I hope that someday everyone dealing with this gets to have many walks in the park, healthy!
God Bless,
Amy Jo
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