Quote:
Originally Posted by Marlene
I really cannot speak to the MDS but I'm sorry to hear about the doctor's poor bedside manner. Is there not another hematologist in his HMO? I think it's very important for your healthcare team to provide a reasonable level of hope and offer solutions.
Is he off all treatment except transfusions? Can you go to his appointments with him to address specific issues with the doctor. We kept copies of all lab results pre-diagnosis and post. This way you can see trends, see exactly what they tested for and see the results first hand.
A second opinion is in order and I would not hesitate to get one even if you have to go out of network for it. I think this doctor made up his mind early on that your Dad was not going to improve and is not giving him the full attention he's entitled to.
|
Marlene,
I agree! I have to take baby steps with my father, which is paying off. He has invited me to attend his next appointment on Wednesday so that I can discuss my MDS research with his hemo/onc. This is HUGE! My next challenge is to get him comfortable with getting a 2nd opinion. All of the support I have been given here has given me the strength to keep working towards this for him.
Best wishes!