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My dad took almost 5 months before the dacogen started working. Once it started working, he was fine for a year and a half (getting dacogen for 5 days every 3 weeks). The dacogen stopped being affective, so now they have him trying vidaza. He's been on this for almost 4 months, but there hasn't been any big improvement yet. He has to go get a transfusion tomorrow because his hemo is down to 5.7. I am praying the vidaza starts working in the next month. When he started dacogen, it was awful...his hemo went down really low and they put him in the hospital. He even wound up in ICU. He also had to get several transfusions after starting dacogen. It was so great when it finally started working! Your husband's situation sounds very similar to my dad's! Apparently it gets worse before it gets better.
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