Beth,
I so feel your pain. So many times, I "thought we were making progress," only to be knocked down again. But we keep getting back up. Try to keep the faith. Believe me, there are lots of us who know how you feel. I wish they would have tried my husband on Dacogen after he did not respond to Vidaza, but none of his doctors agreed with me. Imagine that - they have a degree and I don't - that might be the reason!  Got to find some humor somewhere.
I hope your husband does better soon. Hang in there.
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Linda, Al's wife, 75; dx MDS 5/2010; Vidaza 6/2010; ARRY614 & Sapacitabine clinical trials at Emory, no results, stopped 12/2011. Had BMB at NIH on 6/5/12, blasts 10-15% so he's not eligible for trial there. :eek Promacta trial, Tampa, blasts 25-30% 8/17/12 AML, trying Dacogen now and praying.
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