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Moffitt visit
A quick post to say everything went as well as could be expected for a first visit - lots of new protocols to get used to. The good news is that we have decided to do the Eltrombopag trial and will get study drug today. We ended up having to stay overnight in Tampa because Al's platelets were 6000 yesterday.  So they gave him platelets and we didn't get to hotel until 7:30 last night, after being up since 4:30 a.m. to catch an early flight. Al was exhausted and I was a little tired myself. We are hoping to get home later today and will post more. Thanks for all the well wishes.
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Linda, Al's wife, 75; dx MDS 5/2010; Vidaza 6/2010; ARRY614 & Sapacitabine clinical trials at Emory, no results, stopped 12/2011. Had BMB at NIH on 6/5/12, blasts 10-15% so he's not eligible for trial there. :eek Promacta trial, Tampa, blasts 25-30% 8/17/12 AML, trying Dacogen now and praying.
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