Thread: Moffitt visit
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Old Sat Jul 14, 2012, 07:25 PM
PattiDean PattiDean is offline
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Join Date: Jul 2012
Location: Clearwater, FL
Posts: 171
Good evening Sally,

Dean received his blood and platelet transfusion today. We were at the hospital for almost five hours. Tomorrow we drive to the oncologist's office so the doctor can give Dean an injection of neulasta, I believe it is for his WBC. I told Dean he must be special that a doctor is meeting him on a Sunday morning alone.

The only problem Dean is having regarding his treatment is twitching and sleeplessness. He receives a steroid before getting his Dacogen, so maybe that is what is causing that. At least it is making Dean hungry, he is eating all the time, so that is good. When we see the oncologist tomorrow we will ask about the twitching. Also, Dean's blood pressure is high for him 140/90.

Monday is the VA, hope Dean can get started on Revlimid soon, the doctor wanted him to begin on Monday, but that doesn't look possible, it may be a little while longer. Apparently there is a lot of paperwork for this drug.

Dean says he served in the military so long ago, he forgot what he did. We look back at those pictures in his uniform and he was a skinny, little kid. Where did the years go?

We will be thinking of you on Monday at NIH. Please keep us posted on how Don is doing. You will be in our thoughts and prayers, that's for sure.

God Bless (I like that) and (((HUGS)))

Patti
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