[milliken2]

Hello Ladies;
It has been a while since I posted - mainly because the PC broke - and went into the 'computer fix t guy'. Really need a new one, but with all that has been happening here - I haven't even had the time to see what is out there. Got the laptop up and running - haven't had it going since we left Florida in March.
Anyhow = Linda - I am glad you and Al had a good experience at Moffitt. Also - regarding the platelets - I know Earl's have to be irradiated to make sure there is definitely no 'nasties' present - and they always come up from Pittsburgh. He has a blood draw twice a week - and we fo to the local in network hospital for that - and the results are faxed to our hema/onc, and he orders the blood. I don't know what is happening to Earl's blood and platelets, but he had 2 units of blood on Friday, along with the BIG bag of platelets that actually contain 5 units. He was in bed most of Saturday, and only up to his chair and back to bed yesterday.
Last week, he had aother BMB in the Dr.'s office - and I thought I would have to peel him off the celing. He actually screamed, and squeezed my hand so hard - it's bruised. We went for his blood draw this AM - and he needs 2 more units. We got a rush appointment to see the Doc - so we wl be there at 10:00 AM - then see when they schedule the transfusion. This will make 156 pints of blood since the middle of August last year when I started counting.
He has finished his 4 session of Dacogen, but don't feel like it is working, as his counts keep dropping, and the transfusions are even more frequent. I know they told us between 4 and 6 sessions, but I would have thought there would be some improvement by now. He can't take Revlimd since one of the side effects is clotting - and he has already had 3 clots in his legs, one in his arm, and one in his suerior mesenteric artery (the one that feeds the bowel) and he actually had a gangrene bowel and lost over 13 1/2" - but did not have to have a colostomy.
Sorry for the ramble ladies - but I guess I am gettng kind of stressed here doing it all on my own. At least I got the grass mowed before the thunderstorm hit the other day.
Much luck to each of you and your husbands as we travel this terribly rocky road.

Beth