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Old Thu Jul 26, 2012, 05:58 AM
PattiDean PattiDean is offline
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Join Date: Jul 2012
Location: Clearwater, FL
Posts: 171
We are back on forums

After being offline for a week my internet service is now back.

Dean received his first Dacogen treatment July 7 -13. On July 14 he had to be transfused with blood and platelets. Sunday, July 15 his oncologist met him at the office and gave him an injection of Neulasta.

Monday July 16, Dean had involuntary twitching of his arms, was very tired and didn't want to eat, he had no fever. Tuesday, July 17, we had an appointment with his oncologist for blood work, after getting the results of the blood counts, Dean was immediately admitted to the hospital.

His WBC 0.3, RBC 2.7, HGB 8.1, PLTS 3. Dean was in isolation, received IV, antibiotics, packed blood, platelets and daily injections of Neupogen. Yesterday he came home from the hospital. His counts improved slightly, WBC 0.7, RBC 3.1, HGB 10.1 and PLTS 11.

For now we will be seeing his oncologist everyday for blood work, and having transfusions when needed.

How long can he be on Neupogen?

We are still trying to be approved for help with the Revlimid, but have not received an answer.

Dean is very tired and weak, it has been a busy three weeks, first finding out he had MDS, the week on Dacogen, which was actually a good week for Dean, he had no problems, and now another week in the hospital. It is sure good to have him home.

We have missed the boards and the support we receive from each of you through this disease. Sally and Linda have sent us emails with encouraging words and keep us going.

Thank you everyone, it is nice to be back.
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Dean,age 76, dx MDS, RAEB-2, 17% blasts, June 2012 - May 2013 - Dacogen with Neupogen and transfusions as needed. End of May 2013 Dacogen stopped working. BMB July 2013 shows RAEB-2 and severe Myelofibrosis. Passed away September 30, 2013
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