[Al's Wife]

Good advice from all. Patti - so glad you've got your Marrowforums back and especially happy to hear Dean is home.
I'm wondering after reading what Birgitta wrote if Al should not take Tylenol. I'll have to look that up as he takes Tylenol PM sometimes to help him sleep rather than the sleeping pills the doctor ordered.
Al is feeling okay but his platelets are so low (6,000 by manual diff. and 1,000 by machine) that I worry about him constantly. We are changing local oncologist (well, not really changing - just going back to the MDS specialist who treated him at Emory for the last two clinical trials) for our weekly labs, as our regular oncologist does not want to do anything unless Al has active bleeding. Moffitt in Tampa says they transfuse at less than 10,000. Emory says transfuse at less than 10,000. Local oncologist said don't transfuse unless you start bleeding. We've been caught between a rock and a hard place and not knowing what to do. But beginning next week we are going back to Emory for weekly labs. Then the following week we will be back in Tampa for a bone marrow biopsy and hopefully some direction.
This is really a tough time for a lot of us with our loved ones. I can't imagine going through this alone - without the benefit of this Board.
Hope Sally and Don get good news today from his heart doctor. And Beth and Patti, I'm praying for good news for y'all too. We could all use a bit of good news.
Hugs,