[surabhi]

Hello,

My mom was diagnosed with MDS that quickly started progressing to AML and she was given Decitabine when her bone marrow suggested RAEB-II. Since she was way too weak and underweight, she wasn't given the completed dosage but she survived the chemo and felt good for about a month and a half with her HB count moving to 13 from 9 very fast. but she was diagnosed with infections post chemo and the doctors said that was common during chemo since the body is weak and you are prone to infections. There was swelling in her lymph nodes all through the body. After a PET Scan, she was also diagnosed with Tuberculosis. She is being treated for Tuberculosis for 4 months now and her medication for MDS (she was given EPO and Flagel) has been stopped for a month now.

Its been three months since her chemo and after that one month, her body started deteriorating again and now her appetite is gone and she is feeling weak again with complaints of feeling dizzy and very weak. Today her bone marrow report says Refractory cytopenia with multilineage dysplasia with 1% blasts and her HB is 10.

I am wondering if this is any form of relapse (and i am very sacred about it) or this form of MDS is result of the chemo? Can chemo alter the form of MDS that one is suffering from? Also, she is again deteriorating quickly, is RCMD more prone to AML conversion or is this curable?

I am worried and don't want to see my mom go through all that pain again. I will be grateful if someone can help me with the questions here. I am scared of a relapse as I have seem so many people die of a relapse when she was hospitalized.

Please help.. please.

Surabhi