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RCMD
Hi Surabhi,
As far as I understand your mother responded to Decitabine (Dacogen) but unfortunately her weak immune system could not fight tuberculosis - she had probably had that infection a long time befor the bone marrow disease.
She had a severe form of MDS initially, RAEB-II. Now she has RCMD that is a less severe type of MDS (I have it myself since 2006). Both are blood cancer and can only be cured by stem cell transplantation. I don't think it is possible for a patient with tuberculosis to get a stem cell transplantation. Perhaps she can continue with Decitabine?
Kind regards
Birgitta-A
73 yo, dx MDS Interm-1 (RCMD) 2006, transfusion dependen since dx. Supportive therapy with transfusions, drugs for iron overload and Neupogen for low white blood cells until 2010. Started Thalidomide + Prednisone 2010 with positeve result.
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