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Hi Surhabi!
Im sorry to hear about your Mom's trouble. Echoing what Birgitta as said, here current diagnosis is actually much better than the RAEB-II. Generally, it's the blast count that indicates a more severe form of MDS, and RAEB-II is associated with 10% to 19% blasts, so the fact that she has 1% now is a significant improvement, thanks to the Dacogen.
It sounds like her current difficulties may have more to do with the risk of infection. What is her neutrophil count. Have the doctors suggested Neupogen or Neulasta to try to stimulate more white blood cell production?
Take care!
Greg
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Greg, 59, dx MDS RCMD Int-1 03/10, 8+ & Dup1(q21q31). NIH Campath 11/2010. Non-responder. Tiny telomeres. TERT mutation. Danazol at NIH 12/11. TX independent 7/12. Pancreatitis 4/15. 15% blasts 4/16. DX RAEB-2. Beginning Vidaza to prep for MUD STC. Check out my blog at www.greghankins.com
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