Don't be scared!
Kathy, Hope I can help ease the INITIAL FRIGHT. My husband and I went thru the shock diagnosis and I began dacogen treatments 3 years ago. The first few months can be a bumpy ride (as it takes a few months for the dacogen to "kick in"), but you just have to ride out the storm.
My advice is to learn as much as you can, keep ongoing dialog/questions with your drs. and nurses; join a local support group if you have one in your area-you can find out through the AA/MDS Foundation website, (along with this wonderful forum online)!
It's been 3 years now and the dacogen continues to keep me healthy with no symptoms of the disease. Hope things go well for you and your husband as well!!!!
Sit back, take deep breaths, and take care of yourself, also.
Karanne
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66 yr female;diag 6/09; MDS, unspecified, normal cytogenetics: blasts 10%; successful Dacogen;every 4th wk.; as of Aug.'12 changing to every 5th wk., stable at Hgb 12-14/platelets 200-300/wbc 2.-3.
Last edited by kgtuck : Thu Aug 2, 2012 at 04:03 PM.
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