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Thank you Slip up 2. I have been asking for copies of all of Dean's blood work, and I am keeping records of his transfusions, dates and how many units. I never did ask for a copy of the first BMB, will do that on Tuesday when Dean has an appointment with the oncologist. Hopefully he will go over the results from the BMB at that time, since the doctor has not done it to date.
Thank you Birgitta-A for the information about remission. You answered my question about having a second BMB before determining Dean is in remission. I guess that is what is bothering me, that the doctor is saying Dean is in remission based on his blood counts during the last week and wants to discontinue the Dacogen.
I am going to ask about a second BMB when we are in the office this week. I want to base Dean's remission on more than just his blood counts. It still just seems to be too soon.
Thank you again to everyone who has replied to my thread and is helping me with your kind support and suggestions. You help more than you could know.
Patti and Dean
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Dean,age 76, dx MDS, RAEB-2, 17% blasts, June 2012 - May 2013 - Dacogen with Neupogen and transfusions as needed. End of May 2013 Dacogen stopped working. BMB July 2013 shows RAEB-2 and severe Myelofibrosis. Passed away September 30, 2013
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