[milliken2]

Hello All;
Well - here we are again. Earl begins his third week off Dacogen, and continues to decline. He has received 10 units of blood in a 21 day period, along with 4 large bags of platelets - with no successful result. The BMB after the 4th session of Dacogen showed his blast count had increased 2%, and we haven't had a week of decent numbers since. The highest his hgb has gotten in 8.3 - and the platelet count goes from 6,000 up to 14,000. I think one time early on that the platelet count hit 43,000 - but we haven't seen that level in months. He has no appetite, and of course is weak. He doesn't even come to the kitchen anymore for meals - I bring them to him in his comfy chair on a tray. Even the dog seems to be distancing herself from him. She used to be right by his side, now it seems she is more with me. Maybe she thinks I need comforting, and she knows where we are headed.
I do have an emergency call in to the GI doc to see if we can get him in there and have and upper and lower GI done, as well as swallow the camera to look at the jejunum (middle section of the bowel that the scopes can't reach). I have also made a follow up appointment with Dr. Sekeres at the Cleveland Clinic - the fifth of September. It may sound like I am grasping at straws, but I am certainly not willing to give up either.
Thanks for listening.
Beth