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Jill, it is so sad to hear that your dad is not doing well, I know it has to be so difficult not being able to help him and see him suffer.
My husband, Dean, is 75, he was just diagnosed with RAEB-t and began Dacogen in July. He just finished his second cycle and his counts all increased. Our oncologist is putting Dean on Revlimid, as a matter of fact he received his medication today, lots of paperwork for this prescription.
We see our oncologist tomorrow, and I guess Dean will begin Revlimid after the appointment. Not sure if Dean will continue with Dacogen, our oncologist seems to think that Dean is in remission after just two cycles and is talking about taking my husband off of it. Not sure if we feel comfortable with that decision.
We have also heard the same about the 5q chromosome, but until now we have never found out if Dean has that chromosome, we are definitely going to ask the doctor tomorrow.
I will keep you and your dad in our thoughts and prayers. Please keep us posted on how your dad is doing.
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Dean,age 76, dx MDS, RAEB-2, 17% blasts, June 2012 - May 2013 - Dacogen with Neupogen and transfusions as needed. End of May 2013 Dacogen stopped working. BMB July 2013 shows RAEB-2 and severe Myelofibrosis. Passed away September 30, 2013
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