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Beth: You and Earl have my earnest prayers as well. Your post reminded me of how bad off my mom was when she was on the Revlimid. We were using a wheelchair as well because the trek through the hospital was unthinkable. She was so weak. We were in and out for transfusions every few days. Those were rough weeks indeed.
I do hope you find an alternative to the Dacogen which of course, is strange to say since I'm hopeful that Dacogen is the magic medicine for my mom.
Stay strong and take care of yourself, as well. I think I was in panic mode with my mom and once things settled down it has hit me like a ton of bricks. I can't imagine going through those weeks again and yet I know I have to be prepared for anything. It's a tough row to hoe.
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