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Old Wed Aug 15, 2012, 06:28 AM
Chirley Chirley is offline
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Join Date: Oct 2007
Location: Logan City Australia
Posts: 1,100
Thanks Birgitta, I understood the broad concept of the article. It's unfortunate that there is no real data regarding hypomethylating agents but maybe that's a good thing

I feel a little like someone who's escaped a jail cell to find I might have tunneled into the exercise yard.

I guess it's just like everyone here, there's nothing to do but wait and see.

Its 18 months since I've had a BMB and even though the last one was a vast improvement on the previous ones, it was still abnormal and now with my counts starting to bounce around a bit and my platelets steadily declining, I would feel a little more secure if I had another BMB but my doctor doesn't seem to think it's necessary.

Regards

Chirley
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Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
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