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Platelets
Hi Chirley,
You know I don't think you have a bone marrow disease but low copper eventually since you were born. All symptoms can depend on that - good that your bone marrow manage to produce cells after so many years with harly any copper at all.
Platelets are often a problem - they are so sensitive. I have been worried about my platelets since dx. I try to avoid everything that eventually can decrease platelets: drugs, food and other substances. I have asked my doctor when I will stop taking Thalidomide and try Revlimid instead. He has told me that we shall wait until they are 50 - last count 72.
I have not had a BMB since before Thalidomide May 2010 - I can't say I miss it though I have so severe fibrosis that they can't aspirate (that's the part that hurts).
Kind regards
Birgitta-A
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