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Today's visit
As expected the news was not good. Three options: Hospice called in to make him comfortable - weeks not months usually with AML (doctor's words NOT mine).
Another clinical trial.
Decitabine (Dacogen)
I want him to do the Dacogen which he may be able to start Monday if he agrees to it.
They are ordering oxygen for home.
Dr Khoury said not much chance of anything working but I have seen it work for others.
Port not an option because of low platelets.
BP is very low so stopping all meds for BP.
Waiting to gets labs and fluids I think. Kind of numb.
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Linda, Al's wife, 75; dx MDS 5/2010; Vidaza 6/2010; ARRY614 & Sapacitabine clinical trials at Emory, no results, stopped 12/2011. Had BMB at NIH on 6/5/12, blasts 10-15% so he's not eligible for trial there. :eek Promacta trial, Tampa, blasts 25-30% 8/17/12 AML, trying Dacogen now and praying.
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