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Oh, Beth, I'm so glad things turned out well for you and Earl and that he was able to come home. But isn't it a crying shame that with all the other things we are dealing with, we have to put up with such incompetence. I really ought to write a book!
When Al went to the ER after passing out almost two Sundays ago, I had to ask for the patient advocate due to some issues in the ER.
Hope Earl's numbers come back up too. If you are like me, you are worn out. I told my sister on the phone tonight that I couldn't even feel my body - and that's the truth.
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Linda, Al's wife, 75; dx MDS 5/2010; Vidaza 6/2010; ARRY614 & Sapacitabine clinical trials at Emory, no results, stopped 12/2011. Had BMB at NIH on 6/5/12, blasts 10-15% so he's not eligible for trial there. :eek Promacta trial, Tampa, blasts 25-30% 8/17/12 AML, trying Dacogen now and praying.
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