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Hi Sharon,
I don't know if you saw my earlier reply, but the World Health Organization and the National Cancer Institute recognize it. I have benefited from a Cancer Pool at my job assisting with pay while I work on my MDS, and the American Society has offered me services as a Cancer patient.
The AAMDS Org presentation I discussed in my earlier posting, did aknowledge MDS as cancer, however the Dr. does mention the MDS "shadowlands".
Giving something a "label" can be a beneficial thing.
hope this helps
Donna
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f68 MDS; abmt 1/12. ABO mismatch 11 mos. (70) transf. Ferr 3-5k. 8 phlebot. AGVHD to CGVHD. skin,eyes. lungs as of 10/13. muscle weakness &osteo long term steroids.photopheresis 2x wk as of 3-15.pred 20 eod,acyclovir, mepron, voriconazole, pantropazole, lisinopril, montelukast, anoro, azithromycin.
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