Hi Dena- Thank you for getting back with me- I'm going to NIH in a week to find out more what my options are - especially with the immune deficiency related to the AA. Also- to see if I get tested for hereditary Methemoglobinemia. Glad I'm off the Dapsone- it has a lot of side effects.
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Lisa, Retired Air Force, diagnosed AA 6/2012, TERT and Living Life to the Fullest