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Encouragement
Hi Sharon
Very sorry you have joined the MDS ranks. It's pretty scary at first, but remember that "knowledge is power". Find out as much as you can and trust that God cares about you and will be with you no matter what happens.
I also have MDS RCMD and just wanted to share that when I don't feel well I've come to the conclusion that often it's because my body is fighting an infection, though sometimes it's not obvious what type of infection. My haematologist prescribed 4-weekly infusions of gamma globulin (called Intragam) and the quantity is determined by your weight. I believe this has helped my immune system a lot. You could ask your doctor if it might be an option for you. However bear in mind that even within individual categories of MDS we are all different.
I hope you find something that can help you feel better!
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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