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Dear Vicky,
are you 5q-, since you start a Revlimid therapy?
I also tried Revlimid (in a trial, because I am not 5q- and Revlimid for non-5q- has not yet been approved in Germany).
Unfortunately my doc stopped me after 6 weeks. My leukocytes had dropped under 1, so I was expected to have serious infections. After breaking up with Revlimid my wbc took 8 months to normalize. And I was very lucky not to have any inflammation or sth.
Beside the decrease of the whites I did not have any of the side-effects on the Revlimid leaflet.
Don't be afraid, the doctors will take care of you and look after your counts very thoroughly. Try it, it will probably help you for a while.
Bergit
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female, 54, MDS-RCMD, trisomy 8, dx 2006, response to EPO and therafter VPA only for a couple of months, transfusion-dependent twice a month, watch&wait for SCT somewhen in the future with my brother as a donor
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