|
Neil;
I think they got the message - both from the Doc - and from me. One of the nurses asked us if her rear end looked any smaller - because she got an 'a_ s chewing' from the Dr for what they did.
They all KNOW that I won't accept inferior care when it comes to Earl, and from here on out - if our Dr. is not in the clinic NOTHING will be done until I actually talk to him. I wish I didn't have to be so vigilant - but I would like to see some improvement. His platelet transfusions have been MUCH more frequent. 2 times a week for the previous 3 weeks, and again on this past Monday. They didn't even carry over from Friday.
We did sign a Revlimid release on Monday, so I hope it gets approved, and that it might lengthen the time between transfusions. He has no energy now, and will have less after this week of chemo. I am getting so frustrated since all I see is a downhill slide. We have hit 180 unit of PRBC's since August 13 of 2011, and I didn't keep track of the platelets - only the last month or so when they became so frequent.
And your wife is lucky to have you. Take care Neil.
Beth
__________________
Beth - R.N., B.S.N and wife of recently diagnosed husband who has been classified at stage 4 MDS  . and I can't help the one I love the most.
|